The tough have trouble sleeping and get rather a bad headache...
DK is getting better, I am getting worse. I have caught one of the boys colds and will no doubt be looking for a lot of sympathy over the coming days.
The hospital called to say that DK has to be flushed daily until his operation which should be at the start of November (provisionally) so MK has taken him to the hospital in CPH to be taught how to do it. He doesn't seem to like it much so I expect there will be a lot of mess and screaming involved in that over the coming days.
My bike ride was cancelled yesterday due to some shit/fan interfacing at work. Hopefully I can get that cleared up today and relax a little this evening.
You have so much to consider for DK, have you done all your research yet? Are you happy with the medical care there and want a second opinion? Did you know there's one of the top 3 rated Children's Hospital's in Denver, CO? Here's info:
ReplyDeleteThe Colorectal Program at The Children's Hospital is a multidisciplinary program designed to provide diagnosis and treatment of colorectal and pelvic floor disorders. We offer the only pediatric colorectal program in the western United States, and our program is a member site of the International Program for the Creation of Bowel Management Centers. We provide specialized care for children with such diagnoses as anorectal malformation, Hirschsprung's disease, and tumors or trauma in the pelvis that affect nerves in charge of bowel and urinary control.
In the Colorectal and Complex Pelvic Floor Disorders Program your child will have a specific treatment plan tailored specifically to his or her needs.
Bowel Management Week
For children who fit the criteria, we offer a week-long intensive bowel management program. This outpatient program, called Bowel Management Week, is targeted for children of potty training age and is designed to achieve continence in children who are incontinent of stool. During the week, families and patients meet daily with the multidisciplinary colorectal team, who will implement and monitor a treatment plan tailored to your child's needs. By the end of the week, most patients are able to stay clean and dry and wear regular underwear.
Colorectal and Complex Pelvic Floor Disorders Program Care Team
The colorectal team members are trained specifically to identify, treat and provide support for patients with colorectal disorders. The team is dedicated to providing the necessary tools to help your child achieve optimal bowel and bladder function, thereby improving your child's physical and social quality of life. Our care team includes specially trained and highly experienced pediatric surgeons, urologists, gastrointestinal specialists, nurse practitioners, a nutritionist, social worker and other health care providers who work together to offer the best care for your child - and your family.
Pediatric Surgeons and Pediatric Urologists are board-certified and trained to care for anorectal malformations in children.
Resources For Patients and Families
The Pull-thru Network was organized as a chapter of the United Ostomy Association in 1988 by a group of families whose children were born with an anorectal malformation. Today, the PTN is one of the largest organizations in the world dedicated to the support and information needs of the families of children born with imperforate anus, cloaca, cloaca exstrophy, bladder exstrophy, VATER Syndrome, Hirschsprung's Disease and other related birth anomalies.
Contact Us
For more information on the Colorectal and Complex Floor Disorders Program, please call (720) 777-6571 or e-mail the care team.
For more information on the Colorectal and Complex Floor Disorders Program, please call (720) 777-6571 or
e-mail the care team.
The Children's Hospital • 13123 East 16th Avenue; Aurora, CO 80045 • (720) 777-1234
The Children's Hospital is affiliated with the University of Colorado Denver.
The problem is that we have health cover in Denmark and until the doctors here say that they can't treat him, we are more or less stuck. Going to the UK would involve a very long process of diagnosis etc via the biopsy route again and who is to say that they are better anyway.
ReplyDeleteI don't know but I am pretty sure that major surgery in the US would cost significantly more than we have in the bank...
Did the Fan hit the s ... or the vv?
ReplyDeleteWhat's the point of the comment about fans & s--- ?
ReplyDelete